Monday, April 10, 2017

2018 MoCo Executive Candidate and 2 Council Candidates are 2006 'density rage' 2.0





"Steady state' neoliberal budget, affordable housing, transportation and land use policies of Marc Elrich and his 'slate' including Chris Wilhelm and Ukiah Busch will continue the inequities forcing people to move to other counties, like Prince George's County, with greater but dwindling by similar gentrification, supplies of affordable housing units.  Being 'priced out' of one jurisdiction one can no longer afford can overlap/intersect with disability that limits employability and income potential.  Not retaining residents with disabilities (some of whom may be working with and without LTSS in HCBS settings) belies candidate and elected official claims of being committed to maintaining a diverse community. 

Several of the services mentioned are in Washington DC [in the 2007 report with screen captures in a previous post] and may deny MoCo residents access based on non-residency.  If a person feels that they are a 'good match' for the services they can move to Washington DC from MoCo, Md and relieve the county government of one resident who may have received more money in services than they paid in local taxes (gentrification at a 'one person at a time' level).

Units weren't produced or retained quickly enough for the needs of the occupying tenant population to wait, at whatever low, but rising 'market rate' they could find. 



Two letters from 'back in the day' in 2006 reflect opposition to new housing construction particularly if the units are targeted to 'below median income' earners.  Mansionization has continued with little opposition while gentrification of already expensive neighborhoods has worsened.  



The Gazette editorial rated the current County Council’s performance as ‘‘disappointing, unfocused, contentious and unsettling,” and said ‘‘the time for a shake-up has arrived.” But then the editors went on to endorse six of the seven current members who are seeking reelection.
Three of the incumbents — Marilyn Praisner, Phil Andrews and Howard Denis — have worked to control taxes, rein in the budget and protect neighborhoods from the negative effects of mansionization and overdevelopment. They deserve to be re-elected.
But we need to elect four new at-large members if residents are to take back control of our county — Hugh Bailey, Marc Elrich, Cary Lamari and Duchy Trachtenberg. Just remember the acronym BELT. We need a new BELT to help restrict the increase in spending and control rapidly rising taxes. We need a new BELT to slow down growth, so that infrastructure can catch up.
Jim Humphrey, Bethesda
The writer is a member of the Executive Committee of Neighbors for a Better Montgomery.


  Link below has died
http://www.gazette.net/stories/10162008/prinlet161112_32481.shtml


  Below is another copy and paste of content that loaded when I first retrieved it.

The infatuation by Prince George's County government with population growth contributed greatly to the county's budget problems. Sub-prime mortgages were sold to home buyers, mortgage lenders and derivative holders with the promise of exponentially increasing home prices. And the guarantee of always-increasing home prices was based on the expectation of increasing demand for housing which, in turn, is driven by government-assistance population growth.
Maryland and Prince George's County in particular have been especially hard hit by mortgage foreclosures resulting from our county's irresponsible subsidization of population growth. The county is left with the costs of public infrastructure and services associated with this growth but does not have the revenue to support it.
And the current crisis is just the beginning. Prince George's County citizens will be hammered by other costs stemming from continued population growth and overpopulation — fuel shortages, increasing food prices, increasing unemployment, crime and taxes. If Prince George's County wants to fall into complete social bankruptcy, then all it needs to do is continue the insane policies that encourage unending population growth.
Alternatively, if our county is to provide a sustainable, high quality-of-life future for all its citizens, a necessary first step is to immediately end policies that encourage population growth.
Robert Fireovid, Greenbelt, Citizens for a Steady State Economy




  It 'takes a while' to notice but long-term (2006-18) MoCo (Montgomery County in 'social media' shorthand) residents paying close attention would notice the gentrification as well as the resident turnover, noted in links below back to 2000, in existing affordable housing.  Washington DC, site of some recommended health care providers for low income people by the MoCo Primary Health Coalition, has gentrified too.   

  And this link goes back to the rent increases, known only to current tenants who pay more or move out leaving their replacement tenant to pay a likely larger rent increase, during the 1995-2001 'dot-com' boom before the 2001-4 recession/depression depending on how much individual wealth one had to replace lost income as a privatization of costs of individual adaptation to changing local, national and global economic interdependence.


  Those new residents are paying higher rents than the tenants they replaced with no transparency in rent change at tenant turnover.  Owners/landlord management companies save their own costs by rolling most of their maintenance costs into the rent increase at tenant turnover instead of to keep existing tenants at lower, or no, rent increases. 


  New development and gentrification (supporting retention of affordable housing 'stock' or 'inventory' while ignoring retaining the population living in the existing housing at rising 'price points') are issues beyond Montgomery County, Md and Washington D.C. and Northern Virginia.  A look at rising rents in PNW (Pacific Northwest) cities of Seattle and Portland that had been cheaper than large cities in California reflect the same class segregation on the west coast of the USA as the east coast.







  Forgetting the retention of the people (population) as Marc Elrich did in his 2006 County Council candidate statement printed in the now-defunct Gazette (copy and paste added in case the link dies),




*Affordable housing. We are in a crisis. We are losing housing faster than we can produce it. Despite the much publicized work-force housing program and the mpdu’s, our rate of production is a fraction of the number of units that are being lost to affordability every year. For example, last September there were about 8000 apartment units on the block for condo conversion, mostly middle-class⁄working class housing, in other words, work-force housing. Those units lost in a single year would take 10 to 20 years to replace under the County’s affordable housing iniatives. The Council boasts that they increased the affordable housing fund by a third, going from $15 to $20 million dollars, but the problem is that apartment buildings that could be purchased for $25,000 a unit a few years ago, now are costing the County $75-125,000 per unit. So the increased funding is not enough to keep pace with increased costs. Add to that sky-rocketing rents — annual increases of from 10 to 28% — and you can see that we are no where near having an affordable housing policy that is up to meeting this crisis.
I will support a greater focus on housing preservation because units can be preserved more cheaply than they can be built, plus the additional price of accepting additional new ‘‘affordable” units has been to grant builders large density bonuses that aggravates our existing transportation and service shortfalls. We need to find ways to build what need without building what we don’t need. I have looked into the use of land-trusts to help address the problem and the judicious use of County-owned land (when it’s in the right place and doesn’t exacerbate other problems) and agree with Cary Lamari, Mike Subin and others who want to explore this. But the way to test an affordable housing policy is not to measure the number of new units built, but to assess the combination of units built to units lost and ask yourself what is the net gain, or loss, at the end of the year. If preservation results in a better number, then our efforts should be focused in that direction.


What’s your plan to provide more affordable housing in Montgomery County?
I tried to outline some of it above. I’d focus on retention on the existing stock as long as preservation is cheaper than production and as long as we’re in a period where the existing supply is rapidly eroding. As I said, it’s not about the number you build, it’s about how many units you have in total at the end of the day. I would look to partner with non-profits as we’ve been successfully doing in Takoma Park.
I favor programs that would help tenants become owners of their units, as long as the County puts resale caps, similar to the MPDU program, so that long-term affordable is maintained while allowing the tenant⁄owners to build equity.
I would favor the County targeting construction of affordable and workforce units and contracting for their design and construction, rather than selling lots to developers at market, giving density bonuses and trying to eek out a few affordable units. If you consider the fact, and it is a fact, that development is costing more than the revenues it generates, all of the housing over and above the affordable units just adds to the strain on the County services budget, the load on the roads and the spaces in our classrooms. It makes long-term sustainability more difficult.
I support partnering with non-profits to help create land-trusts in which ownership of the land is retained by the County or non-profit so that long-term affordable uses of the units can be guaranteed.
I’d support down-payment assistance programs for County employees and look at programs that tie repayment of the that assistance to length of service in the County. It could be a good recruitment tool in an expensive market and could help with long-term retention of our employees. 



to focus on the 'housing stock or supply' in the local 'housing market,' rather than the people living in the existing affordable housing that, one turnover or lease term (rent raise) at a time, becomes less affordable has led to gentrification (displacement of poorer people with richer people).  Displacement partly shows in continuing jurisdictional median income growth and turnover, in rental and ownership occupancy. 


 
  If a candidate wants to be regarded by voters as a progressive, with a D after their name on the ballot, consider three 'modest' proposals.

1. extend county-paid (contractor labor) trash and recycling collection to apartments and condominiums (multifamily housing or common ownership communities) from single-family detached house neighborhoods/sector plan areas instead of passing those costs on to management companies/landlords and common ownership boards.  The shifting of those costs will, or should, keep rent and condo fee increases lower. 

2.  Require apartment buildings built before the mpdu law was passed to offer the same percentage of their units as moderately priced dwelling (MPD) units, whose rents were lower at the time, but have risen by a lower proportion that has become high enough of a net increase over time (40 years since MPDU law passed), as to render older apartment buildings as unaffordable as the Class A 'luxury' apartment buildings built since 2012 after zoning changes, with planning board and council permissions, despite whines of 'developers buying candidates and paving over MoCo.'  2018 and beyond MoCo local and Md General Assembly candidates could be even more progressive and expand the percentages beyond 15% as well as addressing a gap between income eligibility for MPDU programs and 'market rate' affordability that leads to working class population displacement by upper middle class populations.  Raise the maximum incomes for eligibility a larger amount or reinstate the 'workforce housing' program cancelled by 2008, with a phase in period like minimum wage increases, to 'catch up' and reduce the eligibility-market rate affordability gap.    









 Back to the original 2006 council candidate statement by newly term-limited (as of Nov 2016 ballot initiative rooted in property tax whining by people who could afford, unless they were long-term owners who still have equity to borrow prudently against, the hyper-gentrified housing costs to buy their homes in the first place) 3 term council member and 2018 MoCo executive candidate Marc Elrich for 'modest' proposal number 3 to stop the re-branding of opposition to specific housing and infrastructure projects into 'good government' advocacy by collectively accepting a vision of a community that extends beyond the built and natural environments one sees every day (neighborhood/sector plan area) to the wider community (county, state and country) one 'calls home.'



Democrat
Candidate name: Marc Elrich
Place of residence: Takoma Park
Community associations, involvement: Founder and former president, Between the Creeks Neighborhood Association.; former regional vice president, Maryland Low-Income Housing Coalition; past vice president, Silver Spring-Takoma Park Traffic Coalition; past member, CURB (group to repeal Pay and Go); Silver Spring Sector Plan Citizens Advisory Committee; Silver Spring Redevelopment Citizens Advisory Committee; Transportation Policy Review Task Force; member of NARAL, NOW, NAACP, Sierra Club, Progressive Maryland



3.  The past repeal of 'Pay and Go' won by civic/community organizations like CURB that Marc Elrich cited his involvement in made the choice to demand scrapping the assessment of additional fees paid by the demonized 'developers' (new housing builders) to support infrastructure construction to support the 'growth' (new housing and residents).  The choice of those involved in CURB, including Marc Elrich, to demand raising the fees was a 'road not taken.' 

    Perhaps CURB, including Marc Elrich, wanted to both stop new housing construction 'development' and stop new infrastructure capacity improvements, for anyone but current county residents and a marginal few always richer new residents as housing tenancy and ownership 'turns over,' as a two-track advocacy strategy.  To avoid and deny being called out as 'nimbys' CURB and other civic activist groups engaged on civic process issues like campaign donor influence, capping the rate of property tax increases and term limits to falsely equate not getting what they wanted (new housing and 'excessive' capacity infrastructure being stopped) with not being 'heard' in a 'fair' land use process.  

   Other 'civic' groups have switched issues from stopping a 'development' (housing construction) project to 'civic process issues' of campaign donor influence to falsely equate 'not getting the outcome wanted' with 'not being heard fairly.'  Montgomerycivic.org (2004 support of no at-large council seats whose rationale was undermined by 2016 when Prince George's County created two at large seats), neighbors for a better montgomery, neighborhood montgomery, Save 10 Mile Creek (from a Premium Outlets outlet mall), MoCo Voters and Save Westbard, Save 7 Locks School (from a larger school and reuse of an old site for moderately priced housing), Chevy Chase Town and Wayne avenue residents opposition to the Purple Line, supporters of 'bus rapid transit' over light rail for the Corridor Cities Transitway and Save Nick's (Maravell) Organic Farm (from reuse as a sports field after the Germantown Soccerplex raised its league fees too high for parents to afford the per-child registration costs) are examples of how specific 'development' opponents re-brand themselves as advocates of 'open and accountable government.' 


   All movements listed in the above paragraph falsely equate not getting what they want in advocacy with not 'being heard' or 'listened to' and impugn motives of council members and 'unresponsive' staff based on who electeds take money from to pay to get their election campaign speech distributed.  'Civic' or 'community-based, people-powered' groups in the examples listed above are almost as bad as the much-maligned 'developers' because their 'special interest' is preserving big resale or rental (and now airbNb vacation house rentals) profits perpetuating segregation by economic, and civil rights law protected, classes that overlap/are intersectional with economic (wealth and income) class.  



  If fees had been raised, as they were after the 'pay and go' program was repealed in the changes made after the 2006 Clarksburg oversight 'fall-out' maybe some new 'development' (housing) may not have been built in MoCo and the county could have gotten a 'bad' reputation for a 'bad business climate.'  The ranking of local jurisdictions and states for good and bad business climates is a Republican and neoliberal, corporate Democratic, 'meme.'  

  Tax Foundation data gathering that 'business climate' ratings are based on should be questioned based on who praises them on their online fundraising page:






   The 'blurb' about 'Tax Freedom Day' (a per diem calculation of how much income pays income taxes before an individual has 'discretionary' control of the remainder) is from former Rep Dick Armey (R-TX), who under far-right Speaker Newt Gingrich (R-GA) was a predecessor of 2017 Majority Leader Kevin McCarthy under a similarly far-right Speaker Paul Ryan (R-WI).


  Corporations, which love to brag with PR and advertising about how ethical they are, would have shown by their actions a willingness to accept lower profits by paying the higher developer impact fees, and wait for construction to start per new 'staging' regulations and not pass them on as higher sale prices and rents.

Saturday, April 8, 2017

2003 Md. Medicaid Cut to "Grey Zone" Inadequately Replaced with Underpaid 'Recovery Coach' Labor



   Popularly elected, to self-govern, federal, state and local governments ('big guvmint' to social liberal & fiscal conservative neoliberals R, D and 'Independent,' to reduce email and phone clutter of money ask contact, voters) combine to define a 'system' or 'civil society.'  Posts on this blog have stated support for 'rebuilding the system' is better than a 'one person at a time' individual change approach that leaves hidden savage inequalities in life outcomes for people with disabilities.


  Cuts to the PMHS (public mental health system) in Maryland since 2003, as a representative case for what happened in other states as well, were laundered with rhetoric about 'systems transformation' to 'consumer-led and-directed services,' 'respect for individuals' and 'individual empowerment' have led to the outcome, by 2017, of long-term budget cuts for public mental health services.









  


   One question of participants in the recovery coach training (second image above) asks if one has license in counseling, social work or psychology who are usually paid more for their work than 'recovery coaches."  People with intellectual disabilities would never be trained as inclusion coaches or aides to help their peers with intellectual disabilities even under the 'meme' of 'presumed competence' demanding equal treatment in policy development as 'self-advocates.'  


   The Keep the Door Open Acts in the 2016 and 2017 (keepthedooropenmd.org) Md General Assembly sessions were both attempts to raise Medicaid reimbursement rates to community based IL (Independent Living) services providers to prevent more providers from being lost as many have been since 2003.  Individual confidentiality prevents long term outcome studies of what happened to Chestnut Lodge consumers/patients when CPC health closed it by 2002.  The same confidentiality prevents long-term outcome studies of consumers/patients who 'fell through the cracks' when Saint Luke's House and Threshold Services merged into Cornerstone Montgomery and the contraction of Sante Group/Rock Creek Foundation after they sold their 700 Roeder Rd Silver Spring building to the local Catholic diocese and downsized their day program into the SSWRC (Silver Spring Wellness and Recovery Center).   


  Section H of a 2007 report (first 3 screen grabs below) from the Primary Care Coalition lists language capabilities at various private nonprofit IL (independent living) services providers.  Several of the services mentioned are in Washington DC and may deny MoCo residents access based on non-residency.  If a person feels that they are a 'good match' for the services they can move to Washington DC from MoCo, Md and relieve the county government of one resident who may have received more money in services than they paid in local taxes (gentrification at a 'one person at a time' level).  


  
  Section G Consumer Services (fourth screen shot or screen grab down) of the 2 listed consumer services as of 2007.  The one listed at 700 Roeder Rd Silver Spring has moved twice and changed management once and mission to focus mostly on mental health and substance addiction recovery services.   













  The exceptional few people living with mental illness and/or substance addiction who had attained better recovery outcomes 'pushed back' by the end of 2015 in the survey (2 images below) for a livable level of pay and input into the mission of their employers or grant-funders for 'self-employment.'  Needing to advocate for better pay and working conditions exemplifies the long-term budget cuts to the Maryland PMHS on the labor cost portion of the community services budget of the MHA (Mental Hygiene Administration), now called the BHA (Behavioral Health Administration), of the DHMH.  The cuts were achieved by shifting the work from licensed counselors, psychologists and social workers to people with lived experience of mental illness whose lack of academic and licensure credentials was exploited to cut pay. 






   Services for people with physical and intellectual-developmental disabilities have not been cut by the same amount long-term.  If they have been cut by the same amount long-term the cuts haven't affected the delivery in community-based settings as much as public mental health services have been affected.


  Funding for Independent Living (IL) services for people with physical and intellectual-developmental disabilities (as well as people with other types of disabilities) even increased by 2011 with the enactment of the Lorraine Sheehan
'dime a drink' alcohol tax increase earmarked for funding independent living (IL) services.

(dead link copy and paste of Lorraine Sheehan's obituary that no longer loads content follows to help readers learn what Lorraine Sheehan's role in disability rights advocacy was that deserved naming of legislation for her)

 http://www.thearc.org/NetCommunity/Page.aspx?pid=1910

 The Arc Mourns the Loss of Lorraine Sheehan
12/23/2009

The Arc Mourns the Loss of Lorraine Sheehan

It is with great sadness that The Arc of the United States announces the passing of Lorraine Sheehan. Lorraine died on Saturday, December 19 [2009] after a long struggle against pneumonia, compromised by cystic fibrosis. Lorraine was an indefatigable disability rights advocate and a treasured member of The Arc family. She has been an active member of The Arc for many years—serving as a member of The Arc of Prince George's County, and as Past President of The Arc of the United States. As President of The Arc at the time the Disability Policy Collaboration was established, she personally signed the agreement with UCP.

In her leadership role as President and previously as the Chair of The Arc’s Governmental Affairs Committee, she provided the strongest pro collaboration push from The Arc’s volunteer leadership. In addition, Lorraine was President of The Arc of Anne Arundel County, and Government Affairs Chair and President for The Arc of Maryland.  She had been currently serving as the Co-Chair of the DPC Steering Committee.

Lorraine Sheehan grew up in New Hampshire and moved to Maryland with her husband and family in 1965.  She has four children and six grandchildren.  At an early age, her third child, John, was diagnosed as deaf and “mentally retarded.”  Later, he was diagnosed with autism and determined not to be deaf.  John has significant disabilities and lived at home with Lorraine in Edgewater, MD.

Because of John and his special needs – especially related to his schooling – Lorraine became involved in the disability movement.  She focused her attention on independent living opportunities for individuals with disabilities and later on advocacy on behalf of individuals with disabilities and their families.  It was her passion for advocacy that led to her emerging as one of Maryland’s leading advocates for individuals with disabilities.

Indeed, she became one of the nation’s most powerful voices for our constituency, due in no small part to her profound commitment, keen intelligence and charismatic presence.

In 1974, Lorraine was elected to the MD House of Delegates, where she served for nine years. In the General Assembly, she introduced bills on transportation for students with disabilities and the first bill ever addressing the Developmental Disabilities Administration's waiting list.  In 1983, Governor Harry Hughes appointed her Secretary of State of Maryland for one four-year term.

Because of her expertise in the area of disabilities, Lorraine was appointed a Commissioner to the Anne Arundel County Housing Authority.  She continued to focus much of her work on independent housing for people with disabilities, ensuring that even individuals with the most significant disabilities have an opportunity to choose where they live.

As a public official, she educated other policymakers and the public at large while helping to transform communities into places of inclusion. As a parent, she waged a tireless fight for the rights of people with disabilities and their families. Lorraine mentored many family members and professionals.

Professionally, Lorraine went on to be named the Public Policy Director for the Maryland Disability Law Center; she also worked with the Public Sector Consulting Group. She continued to volunteer her time and expertise, by serving on boards and committees charged with improving the lives of individuals with disabilities. Lorraine will be greatly missed – she was a true force in advancing the rights of people with intellectual and developmental disabilities.

Peter V. Berns
Chief Executive Officer




  



  HB1283 of the 2017 General Assembly Session, which passed the House unanimously by 'crossover day,' was opposed by State Comptroller Peter Franchot.  In his arguments Franchot leaves out that more craft (small batch) beer breweries distributing more beer to taprooms for 'on premises' consumption, without a requirement for buyback of beer produced over the increased annual production cap,  will generate more tax revenue under the Lorraine Sheehan Health and Community Services Act of 2011 'dime a drink' alcohol tax increase.  


“What’s more, these strong partnerships between our brewers directly help our retailers and wholesalers, by increasing variety and interest in Maryland beer. A beer enthusiast from Western Maryland who visits a Baltimore-based tasting room and becomes a fan of their products will most likely purchase those products at a local independent retailer. Simply put, a rising tide lifts all boats – and we need to continue to support, not hinder, the relationships that have been built and fortified by our brewers.


   Among the 'boats' lifted by a 'rising tide' of a good craft beer industry are the 'boats' (actually lives lived in communities of ones' own choosing) of people with all types of disabilities (physical, intellectual-developmental, and behavioral/mental health/psychiatric/substance addiction) whose independent living services will have a more sustainable funding basis. A more sustainable funding basis will prevent crises of 2001-2003 and 2009-2011 where service providers close or tighten eligibility criteria (cut population served) after national and global 'recessions' that have worse 'economic depression-like' impacts on working poor and people with disabilities.  In the image below listing the PRP programs and Supported Employment Programs, functioning in 2007 while defunct by 2017, exemplify the severe economic harm done to people with disabilities by the long-term Maryland state budget cuts to programs designed to help people with disabilities find and keep jobs.  



  
[Update April 9 2017 to correct sentence fragment and hold past and current Republican state administrations accountable for the harm of their fiscal policy decisions.]

  The Md. Medicaid cut in 2003, and 2009 demands to restore the cut, (2 images below) that restricted eligibility criteria to incomes above 116% of poverty after it had been at 300% of poverty, proposed by then-Republican Governor Robert Ehrlich devastated, to the point of closure and leaving people with disabilities unserved including the author of this blog post, by 2017 is shown in the images below.     

  2017 incumbent Governor Larry Hogan worked as appointments secretary in the Robert Ehrlich administration.  The job of appointments secretary is vet executive appointees to prevent politically embarrassing and electorally-losing 'scandals' and to avoid the appearance of political corruption. 2017 incumbent Governor Larry Hogan may have vetted the DHMH Secretary (Nelson Sabatini) or MHA Secretary (Brian Hepburn) or MDOD Secretary (Kristen Cox) or Insurance Commissioner (Alfred Redmer) who recommended the 2003 Medicaid cut, making 2017 Governor Larry Hogan complicit in the economic harm to people with disabilities who lost eligibility for services and could not pay the costs of replacing the services in money or time.  


   The cut disrupted, to the point of closure leaving the people with disabilities unserved,  many of the Independent Living (IL) services providers listed in the 2007 report images above.  Rebuilding a personal support system after a crisis is difficult enough for people without disabilities it's even harder for people with disabilities dealing with  poverty and rising costs of living.  Shifting the role of providers to the exceptional few peers working as recovery coaches is grossly inadequate.  The cuts should be fully reversed with 2003-17 inflation adjustments or the recovery coaches should be paid commensurately with the work they are asked to do as the 2015 survey suggested a need for.



Thursday, March 30, 2017

How Inclusive Advocacy Rhetoric for Exclusive Budget Policy Benefit Divided the Autistic Community



 The paper

released with an 'email blast' within 2 days of the 2014 #SOTU Republican response didn't say 'vote for' or 'vote against' a candidate or bill.  "Vote for" or "vote against" candidates or legislation are the 'trigger words' 501c3 nonprofits absolutely can't say as one of the only 'nonpartisan' tests of tax deductible nonprofit status that uses the IRS code to encourage good human behavior ('socially engineer' in the words of social and fiscal conservative Republicans and 'Independents') in how private money is spent.  But the Republican response did use the same word "hopeful" that the paper "Welcome to the Autistic Community" turned into an acronym to guide autistics how to assert control over their life choices from caregivers and service providers.

The 2008 Autreat presentation here revealed a problem in the autistic community whereby people found to live with autism, under the DD diagnostic category, had an easier time, particularly if diagnosed as children not as adults, in obtaining IL (Independent Living) services (LTSS) than people found to live with autism under the mental/behavioral health diagnostic category. 




4) Government Sponsored Discrimination Against Autistics-in California
and Beyond

Janis Oberman  Thursday 10:45am-12:30pm

The State of California discriminates against the Autistic population
by using DSM-IV diagnostic categories in a divisive manner, by
distinguishing between "AS/PDD-NOS" and "Autistic Disorder" in its
policies and when delivering social services. Discriminatory policies
are applied more rigidly to the older adult Autistic population, than
to the younger adult Autistic population, especially concerning adults
who were not diagnosed with Autism before the age of 18. Effectively,
these practices force many Autistic adults into a "Mental Illness"
classification in order to receive social services, where they usually
receive no Autism related services. Such practices exemplify more
general political, economic and cultural processes which occur in many
geographical locations other than California.

The erasure of Asperger's Syndrome and inclusion of past 'clothes dryer setting for humans'/diagnostic 'label' into Autism Spectrum Disorder in DSM 5 by 2013 does not eliminate the discrimination.  In fact, discrimination in eligibility criteria application to individual applications for services continues despite DSM 5 stating intensity of deficits in IL (independent living) skill levels (less negatively judgmental term for 'high' or 'low' functioning 'trigger words') should not affect eligibility for services.  Discrimination still occurs if there is not enough money, from public budgets, to fund the services.  Discrimination often takes the form of service request denials if person is not determined to be ID/intellectually disabled (new 'human dryer setting'/'label' for 'mental retardation' to avoid 'retardation' being turned into the 'r-word' slur) while the person is acknowledged as DD/developmentally disabled.  ID with DD has become the new barrier to financial aid (tax-supported services) with LTSS that mental health or developmental disability diagnostic labels had been as of the 2008 presentation.   The term DD is applied in an exclusive manner while activists use the term DD in an inclusive manner to build a bigger constituency for advocacy and activism.  I call this problem 'inclusive rhetoric for exclusive benefit.'

How Inclusive Rhetoric for Exclusive Policy and Budget Benefit Civic Process Distortion Worked to Favor 'low functioning' Autistics Leaving 'higher functioning' Autistics Perpetually Underserved



Updated March 31, 2017 to correct dollar amount of Medicaid cuts in AHCA that was not voted on March 24, 2017 because Republican whip counts (vote projections) likely could not pass the Republican majority federal House of Representatives.



  State Developmental Disability councils, recommended in the "Welcome to the Autistic Community" paper,



There are also federal and state entities designed to help autistic adults, such as your state's developmental disabilities council. You can find your state's council here: http://www.nacdd.org/about-nacdd/councils-on- developmental-disabilities.aspx. Some state councils may be able to assist in extreme situations; however, councils are not expected to provide individualized services to people.
There are more services for Autistic adults than ever before. However, with our advocacy efforts, more and better services can exist in the future.


Your full participation and pro-active approach toward your own life path can ensure a promising, H.O.P.E.F.U.L future!





 usually ration the tax-funded assistance they recommend be provided, as policy recommendations, to people diagnosed with autism and ID formerly known as MR.  


Compounding 2008-2011 austerity after the Wall Street mortgage lending crash the 'sequester bill' of 2011 cut public services for autistic adults further with little restoration since the 2014 and 2016 Congresses.  Fewer resources are available for 'utilization' in the 'hopeful' acronym/meme if an autistic has trouble paying the costs in money.  


From the "Welcome to the Autistic Community" paper adult version:

Autism has given many of us the gift of dedication. Personal success is promising when our dedicated focus is placed on our personal strengths, talents, and special interests.


Utilize Available Resources.

Do you prefer group outings? Informative books? Online forums? Conferences? Explore and find what options work best for you, then utilize those resources for your advantage.


http://www.cbpp.org/cms/?fa=view&id=1214


http://www.disabilityscoop.com/2013/03/05/disability-cuts-stay/17424/

As sweeping federal budget cuts set in, the impact is starting to become clear for those benefiting from special education and other disability programs.
President Barack Obama issued an order late Friday instituting what’s known as sequestration, a process of deep spending cutbacks that was triggered when Congress failed to reach a budget deal in 2011. While both Democrats and Republicans insisted that they did not want to see sequestration take effect, the parties were not able to reach a deal to avert the cuts.
Accordingly, some $85 billion will be trimmed from this year’s federal budget, touching nearly all military and domestic programs. Funding will be reduced for numerous initiatives benefiting those with disabilities including special education, housing assistance, employment supports, mental health services and research. Medicaid and Social Security benefits are some of the few areas to be spared.  

Because of ASAN commendable 'self' (more accurately many 'selves') -advocacy the sub-minimum wages paid to workers with ID, formerly MR, have risen to the Federal employee and contractor minimum wage of $10.10/hour unless Pres. Don Trump (D'ump) has reversed the executive order, if the 'sheltered workshop' wasn't closed.  The AHCA (repeal and replacement of the ACA that was pulled from voting on March 24, 2017 would have cut Medicaid by $880 billion dollars over 10 years to pay for tax cuts for the rich as part of a 'block grant' to states scheme to shift the budget cuts to the state level.  The disability rights constituency/community would have been unfortunately divided state by state instead of remaining unified as a national advocacy 'single' 'voice.'  


In a commercial park near Mechanicsburg, some 200 people with intellectual disabilities work as fast and hard as their abilities permit.
They also strain against a hard free-market reality: They get paid for what they produce.
As a result, most earn less than minimum wage, and some earn only $2 or $3 an hour.


At the S. Wilson Pollock Center for Industrial Training, Brian Marks gathers armloads of cardboard, dumps it into a bin and rolls it away for disposal.

 

Or read the content at this link


  Rep. Cathy McMorris-Rodgers (R-WA) gave little policy specifics and fails to answer the question how will children with Down's Syndrome/ID live at 66, as well as others with less severe developmental disabilities, live with as much life satisfaction from personally meaningful activity, if not income if they can't work for it to a middle class living standard, as she describes her son's life at 6 w/o the Class Act but with the Able Act her campaign donors will enrich by her Congressional career and possible lobbying career, as well as her husband's potential lobbying career, later.

excerpts from the 2014 #SOTU Republican response with same "hopeful" word and rhetoric that the ASAN paper turned into an acronym:




Tonight the president made more promises that sound good but won’t actually solve the problems facing Americans. We want you to have a better life. The president wants that too. But we part ways when it comes to how to make that happen. So tonight I’d like to share a more hopeful Republican vision, one that empowers you, not the government. It’s one that champions free markets and trusts people to make their own decisions, not a government that decides for you. It helps working families rise above the limits of poverty and protects our most vulnerable, and it’s one where Washington plays by the same rule that you do. It’s a vision that is fair and offers the promise of a better future for every American.


If you would have told me as a little girl that I would one day put my hand on the Bible and be sworn in as the 200th woman to serve in the House of Representatives, I wouldn’t have thought it possible. I grew up working on my family’s orchard and fruit stand in Kettle Falls, a small town in eastern Washington, getting up before dawn with my brother to pick apples.

My dad drove a school bus and my mom worked as a part-time bookkeeper. They taught me to work hard, help others, and always, always dream for more.

So, when I showed my 4H animals at the county fair, my parents used to say to me, “Cathy, you need to save this money so you can go to college one day!” And so I did -- I saved, I worked hard, and I became the first in my family to graduate from college.

The chance to go from my Washington to this one was unexpected. I came to Congress to help empower people, not politicians; to grow the working middle class, not the government; and to ensure that everyone in this country can find a job. Because a job is so much more than a paycheck: It gives us purpose, dignity and the foundation to build a future.

I was single when I was elected -- but it wasn’t long before I met Brian, a retired Navy commander, and now we have three beautiful children, one who was born just eight weeks ago.

Like all parents, we have high hopes and dreams for our children. But we also know what it’s like to face challenges. Three days after our son was born, Cole, we got news no parent expects. Cole was diagnosed with Down syndrome. The doctors told us he could have endless complications, heart defects, even early Alzheimer’s. They told us all the problems.

But when we looked at our son, we saw only possibilities. We saw a gift from God. And today we see a 6-year-old boy who dances to Bruce Springsteen; who reads above grade level; and who is the best big brother in the world.

We see all the things he can do, not those he can’t.

And Cole, and his sisters, Grace and Brynn, have only made me more determined to see the potential in every human life, that whether we’re born with an extra 21st chromosome or without a dollar to our name, we are not defined by our limits, but by our potential, because our mission, not only as Republicans, but as Americans, is to once again to ensure that we are not bound by where we come from, but empowered by what we can become. That is the gap Republicans are working to close. It’s the gap we all face: between where you are and where you want to be.

The President talks a lot about income inequality, but the real gap we face today is one of opportunity inequality. And with this Administration’s policies, that gap has become far too wide. We see this gap growing every single day. We see it in our neighbors who are struggling to find jobs, a husband who’s now working just part-time, a child who drops out of college because she can’t afford tuition, or parents who are outliving their life’s savings.



  Other people with disabilities, who are not 'graded' 'severely disabled' by eligibility criteria for assistance with paying monetary costs of inclusion of people with disabilities,  are left on their own. Whether the rejected or wait-listed safety net services applicant even has a disability is questioned, shamed, demonized, delegitimized with double standards regarding whether public money is necessary to pay the costs of community living that a person with a disability cannot pay themselves.   



  Whether disclosure is moot or a choice to disclose, or not, is necessary, the question both the ASAN paper and Rep. Cathy McMorris-Rodgers (R-WA) forgot in her 2014 #SOTU response, is how a person with a disability is helped to live independently in inclusive community settings (based on a 'severity contest'/'oppression olympics' of issues lived with that Republicans and neoliberal Democrats divide the disabled community with) and who pays the costs if the person with a disability and their friends and family (private resources) cannot pay.  Some self-advocates would call that statement 'disrespectful' or 'bigoted against autistics' to then assess  

 (the process of assessment becomes the new dispute and distraction from doing most self-defined good for the most autistic people at the fastest systemic pace with acceptance of individual variation)

the long term body of research and how many people have benefited from the body of research over a 10 or 20 year time frame.  

  The Autistic self-advocacy community is unfortunately replicating the SPMI/mental health/behavioral health/substance use and addiction consumer/survivor community's narrow impact long-term in the behavioral/mental health community supported by entities such as SAMSHA, the National Empowerment Center, the Connecticut Center on Addiction and Recovery CCAR, the Copeland Center and other peer and life, or recovery, coach accreditation sources questioned in the books "Sham how the self help and actualization movement made America helpless" by Steve Salerno and PC MD by Sally Satel  that Steve Salerno cites.


   Both books ignore private insurer and social liberal-fiscal conservative (neoliberals in both major USA political parties as well as 'independents') taxpayer greed facilitating drug and device symptom treatment rather than long-term person-centered treatment with LTSS delivered in HCBS settings.  Doctors and other health care providers try to provide health care by making up, in clinical practice income, in the volume of patients treated what they can't earn from individual patient billings.  Economies of scale, to control public costs, in the health care field ignores individual diversity.  People aren't widgets in b-school (business school) or undergraduate economics class lectures regarding what is a sustainable economy. 

Please watch the economics lecture at beginning of the film "Back to School" (starred the late Rodney Dangerfield) for the public policy context of collectively, through democratic self-governance, deciding 'who pays the costs that an individual cannot pay' I refer to above in satirized form.  

ASAN paper 'coordinates' memes/themes with R-WA Rep. McMorris-Rodgers #SOTU response


Update Aug 19, 2018 ASAN physical address added.


  ASAN (Autistic Self-Advocacy Network) shows their leaderships' (as of 2014 and probably continuing in 2017) economic 'world view'/political philosophy as well as crosses the partisan line in the timing of the Jan 30, 2014 release of the "Welcome to the Autistic Community" paper to neoliberal Republican-light, deniably enough because of not saying 'vote for or against a candidate or bill,' after they worked



 with Rep Cathy McMorris-Rodgers (R-WA) on trying to pass the Keeping All Students Safe Act (HR 4247) in Congress that died in Dec 2010.  The paper turned the word 'hopeful,' also used by McMorris-Rodgers as a theme/meme in her Jan. 28, 2014 #SOTU Republican response,  into an acronym to divert as many autistics as possible into an 'autistic community' of crowdsourced supports with costs shifted away from the public sector and advocacy directed away from demanding an expanded educational and social safety net of publicly-funded LTSS that are inadequately funded in the first place.


 The #SOTU response 

So tonight I’d like to share a more hopeful Republican vision, one that empowers you, not the government. It’s one that champions free markets and trusts people to make their own decisions, not a government that decides for you. It helps working families rise above the limits of poverty and protects our most vulnerable,


used the same rhetoric as 'moderate' Republican outreach to the disability community with only enough money to keep people with intense needs, some of whom were formerly known as 'low functioning' autistics, included in communities of their own choosing not RTC institutions.


  The "Welcome to The Autistic Community" paper sought to create an 'autistic culture' where it's only 'acceptable,' in public discourse about autism spectrum disorder, to generalize only good possibilities, not bad ones as well as ignoring who pays the costs in money and time that an autistic cannot pay, as part of a "hopeful" acronym-based future


Your full participation and pro-active approach toward your own life path can ensure a promising, H.O.P.E.F.U.L future!


Be Honest.  [underline added]


Observe Yourself in Your Environment.


Be Pro-active. [underline added]


Educate Yourself and Others


Focus your energy on your strengths and talents.


Utilize Available Resources.


Live!

 

[from pg 40-43 of "Welcome to The Autistic Community" paper]



 for all autistics in the paper released two days after the #SOTU Republican response, in a Jan 30, 2014 email
blast,



From: Autistic Self Advocacy Network <info@autisticadvocacy.org>
Subject: Introducing "Welcome To The Autistic Community"!
Date: January 30, 2014 11:01:01 AM EST



The Autistic Self Advocacy Network is proud to announce Welcome to the Autistic Community, educational books which were co-written by ASAN's communications team and the Autism NOW center and illustrated by Anabelle Listic.

Welcome to the Autistic Community introduces newly-diagnosed Autistic people to the community and answers common questions they might have, covering topics such as legal rights and identity.

Welcome to the Autistic Community is currently available in English. It can be found on the ASAN website in two versions, “Adolescent,” written at a sixth-grade reading level, and “Adult”, written in standard simple English.

Read Welcome to the Autistic Community!


Donate to ASAN »   Become an ASAN member »
Autistic Self Advocacy Network: PO Box 66122 | Washington, DC 20035
 








[as of 2017 ASAN moved its physical office space from 2013 H St, NW 7th floor to 1010 Vermont Ave, NW suite 618]

 


 Specific language


There are also federal and state entities designed to help autistic adults, such as your state's developmental disabilities council. You can find your state's council here: http://www.nacdd.org/about-nacdd/councils-on- developmental-disabilities.aspx. Some state councils may be able to assist in extreme situations; however, councils are not expected to provide individualized services to people.
There are more services for Autistic adults than ever before. However, with our advocacy efforts, more and better services can exist in the future.


Your full participation and pro-active approach toward your own life path can ensure a promising, H.O.P.E.F.U.L future!



from the "Welcome to The Autistic Community" paper that subtly redirects people from publicly-funded LTSS in HCBS settings toward an identity politics-based community (autistic) without systemic public funds leading to savage inequalities in long-term individual life outcomes.   The savage inequalities have a basis in individual skill variation at replacing public services with 'vibrant social cooperation'  


In the last decade, social media has been important for connecting the Autistic community. Many organizations and interest groups have appeared online. We recommend that if you use social media, you should connect with people online. It also has the benefit of allowing you to be basically anywhere in the world with an Internet connection, and still be in contact with the community.


through individual communication in public and private (user to user messaging) functions between accountholders on social media platforms. 


This tweet



No. Not everything is possible. Not for everybody, everywhere, all the time. Stop pressuring people to have to be able to do everything!

    •    Retweet 1
    •    Likes 4
    •     
7:52 AM - 1 Oct 2016





with nuance unfortunately stripped out by the 140 character cap,  sums up the flaws in the ASAN paper and advocacy strategy of diverting as many people out of the publicly-funded social safety net, delivered in HCBS settings, toward 'autistic community building' as a 'demand reduction' ideological inversion of failed Reagan-Republican 'supply side economics.' 


 In the absence of a passed and signed HR4247, by Dec 2010, autistic 'self' (more accurately many 'selves') advocacy for two people within the next 6 years, Zakh Price and Kayleb Moon-Robinson, successfully saved both from the school to prison pipeline.  That autistic community-led advocacy is commendable but in no way a substitute for the systemic change HR 4247 and adequate funding for regulatory enforcement would have made.  There are probably many other autistic students who were not so fortunate to attract nationally-based social media and IRL support leading to the dropping of wrongfully filed legal charges and are suffering in institutions of juvenile correctional environments.   

Wednesday, March 15, 2017

Social acceptance goal of Autism Acceptance Month Can Happen Faster with Individual Economic Security for all Autistics

Updated March 17, 2017

  What does cure mean with respect to autism spectrum disorder ASD?  Individual difficulties carrying out activities of daily living/self care in the community a person with a disability chooses to live in ("Major Life Activities" & "essential functions" to borrow ADA legal terms for application to personal lives) exposes issues indicating impaired functioning at levels compared to people without disabilities, among them communication and executive functioning skills (personal organization, time management, dealing with disagreement and coping with stress).  

  People with disabilities experience a range of problems, varying by degrees of severity from person to person, in day to day life functioning.   As well, variations exist in the degrees of help an autistic needs with earning money, from finding & keeping a job working for others or self-employment, to support oneself from employment a person with a disability ideally finds both meaningful and lucrative.  Help comes in many forms and all #PwDs should have access to all of the forms including help that costs (tax) money that the #PwD needs financial aid in paying for.    


  Rethink what 'curing autism' means

  People with disabilities who identify as disability, human rights and neurodiversity activists who don't want a prenatal genetic test for autism to lead to as many abortions as the trisomy 21 (Down's Syndrome) test has led to after positive tests for trisomy 21 (Down's Syndrome) fetuses should stop separating social acceptance of differences from economic costs (and who pays those costs the individual or public sector systems).

  Social acceptance comes more quickly with a state doing the most good for the most people at all deliberate speed with cognizance of individual variation.

  The private for-profit, AKA the corporate-form of business organization, sector seeks to shift its costs of market participation/business operations, to accommodate individual variation in prospective customers/target markets, from large aggregated groups to 'niche market' prospective customers/target markets. The cost shift helps maximize profit for the private or public equity as that is the core mission of a private corporation. The non-profit form of business organization attempts, but rarely can and should not, completely assist its served population (target market) with paying the costs that the for-profit sector has shifted for the fiscal benefit of each corporations' human owners.  Filling in gaps unmet by either the for-profit or non-profit private sector is the job of the public sector (demonized and delegitimized as 'big guvmint/politics.')



The public sector uses a civil rights law protected class framework that relies on the belief that an individual who is left behind in social and economic progress creates costs that grow over time as the individual is continued to be left behind.  The private non-profit sector is necessarily limited by the discretionary income, in money, skills and time, of donors to each non-profit organization that inevitably forces horrible "tradeoffs"
in how to spend limited money and personal resources.  The public sector has, or should have, a greater base of human and fiscal capital to lessen the need for horrible tradeoffs.  At least that is how 'the system' of public and private cooperation to organize civil society of national, state/province and local governance, IMHO, should work. 


  A dispute 


 I see that one of my favorite hatemongers and propagandists in the neurodiversity movement, someone who calls themselves the autism bitch from hell is at it again Her latest post is another propaganda effort with the tired cliche constantly purported by neurodiversity. She writes: Autism Speaks has never come close to being an anti-vaccine group. Its agenda consists of one thing only: Genetic research to develop a prenatal test to be used for routine abortion of autistic children.



between a blogger calling him/herself "autism gadfly"  and other bloggers over neurodiversity may have been rooted in the 'autism gadfly' blogger being 'left behind' in social acceptance and economic (secure livable personal income to 'pay his/her bills') progress. 




 The failure to grasp the concept that many similar independent living problems that autistics live with are repeated manifestations of systemic failures that can be resolved more quickly with a systems change (public and fiscal policy) approach rather than an individual change approach, including assistance with paying the costs of change in money and time, may have been a principled view of the autism gadfly blogger expressed in unfortunately rude and hurtful words leading to conflict.   

 The depth of frustration and desperation of personal living circumstances, from not having his/her views adopted by other autistics as issue and policy consensus in the autistic self-advocacy/disability rights/independent living movement, may have led the autism gadfly blogger to post crude insults about bloggers with whom he or she disagreed, taken out of the original context below:



by a blogger who later died

Tuesday, March 14, 2017

Cross-disability stigma-busting requires ID/DD community reciprocity to MH/BH/SPMI community




   Stigmatized language to talk about, rather than with, people with disabilities is a problem for the SPMI/Mental Health/Behavioral Health community as it is in the ID/DD and physical disability communities.  Indeed, the term "intellectual disability" only came into use because of the federal Rosa's Law after activism state by state for the exclusive benefit, after use of inclusive rhetoric, of the ID (formerly called MR) and DD (developmental disability) community.  


  The letter below represents one manifestation of the similar and persistent problem.

Letters to the Editor
A terrifying disorder




October 24, 2014
   Please, please educate your reporters and editors on the proper use of the word “schizophrenic.” The otherwise excellent Oct. 18 front-page article “Florida floods magnify political climate battle” reported that state leaders took a “schizophrenic” position by denying climate change yet trying to combat it.
   Schizophrenia is a terrifying, severe, disabling brain disorder that affects millions of people and their families. It is characterized by bizarre, paranoid behaviors, including the belief that others can control your thoughts and read your mind.
   Please remember that politicians and others frequently exhibit “puzzling” or “contradictory” behaviors that have nothing to do with this tragic mental illness.


Peter Perl,
Silver Spring


The 'slogan' "Einstein's definition of insanity" in 'political dialogue/conversation,'
 represents another manifestation of the stigmatizing language that still exists after the statutory victory of the 'no r-word' campaign by 2010.
 

("Doing the same thing twice and expecting different results") called "Einstein's definition of insanity,"

often used as part of the pathologization of political disagreement, is as bad as using '- t a r d,' that no r-word activism fought in an anti-stigma campaign that coalesced around the use of the r-word in the 2008 film "Tropic Thunder."


 
This tweet


also shows that the problem of stigmatizing language used to talk about, instead of with, people with disabilities still exists for people living with (and trying to recover from the worst symptoms/traits of) SPMI (serious and persistent mental illness) in HCBS settings with LTSS as people with intellectual/developmental disabilities are (with the 'recovery' concept replaced by social acceptance, mutual respect and community inclusion).  


  No reciprocity has been given in coalition work, on ending stigmatizing language, to mental health consumer and family advocates, who participated in the United Cerebral Palsy-Special Olympics (Disability Policy Collaboration) 'no r-word' coalition.  


  Or, to be more nuanced, at least no meaningful reciprocity, leading to quantifiable gains in quality of life for people in the ID/DD community for the commensurate benefit of the SPMI/Mental/Behavioral health community, was given. 

  


  Use of the r-word in the 2008 film "Tropic Thunder," if a person had bothered to see the film for themselves instead of practicing zombietime.com - style individual activism following the loudest, often remote to a person's physical location, social media advocate voice including 'I don't want my money supporting the film' = BDS tactic, was an admonishment to self-advocate, take charge of one's life, that should not have included the replacement of monetary costs of Independent Living skill improvement, that an individual could not pay themselves, with time on social media searching for a similarly-situated peer and using DIY/maker/open source culture to make what one can't afford to buy or live without.


http://knowyourmeme.com/memes/full-retard?full=1


Here is a video clip of the scene in which the r-word was used. Watching the clip doesn't involve 'spending my money to support the film' also known as the BDS tactic.

https://m.youtube.com/watch?v=1Y3FzVQi-R8

Lazarus: “Everybody knows you never do a full retard.”

Speedman: “What do you mean?”

Lazarus: “Check it out. Dustin Hoffman, ‘Rain Man,’ look retarded, act retarded, not retarded. Count toothpicks to your cards. Autistic, sure. Not retarded. You know Tom Hanks, ‘Forrest Gump.’ Slow, yes. Retarded, maybe. Braces on his legs. But he charmed the pants off Nixon and won a ping-pong competition. That ain’t retarded. You went full retard, man. Never go full retard.”















Shorter script:

Try to maximize your innate strengths.  Self-advocate (for self but mostly as part of a person with disability-led disabled community because ( "individual representation is a legislative fiction"




Try telling that to Autism Speaks or Grasp then, who act with much less
honourable motives than ASAN.
Individual representation is always a legislative fiction, no one person in 
any large community can accurately represent the beliefs and aspirations of 
every single constituent, not in the least because those are likely to be 
paradoxical an contradictory. One therfore advocates a community rather than 
individuals.





   Try to make a case for/demonstrate expanding eligibility for adequate financial aid with LTSS in HCBS settings AKA the social safety net. DIY/maker/open source culture and self-help and actualization/consumer-survivor/self-advocacy disabled community movements can't fully 'work around' paying for or obtaining, for all community members at a decent living standard of daily shelter/permanent supportive housing/food/clothing and employment.
 


   All of the above movements, led by people with disabilities, are to one degree or another attempts to expand what should be a public good/part of what President Lyndon B. Johnson originally intended as a "Great Society" and what President Franklin D. Roosevelt originally intended as a "New Deal."  


   Unfortunately these movements have been turned into attempts to privatize what should be a public good/part of the Great Society and New Deal.  Both the Great Society and the New Deal were disrupted/creatively destroyed by the military-industrial complex, in service to the richest 1% of multinational corporate business owners, trying selfishly to stay richest (kill economic class mobility) in a struggle against communism and national socialism (fascism) or (radical Islamic) terrorism/(sharia law/Islamofascism).  Actually all three 'global enemies' of 'western interests/way of life' represented 'undemocratic socialism' of a socialist economic system without representative, or proportional, representation within democracy, as a political system, of how people self-govern.  

   Note small d and r for nonpartisan world view/outlook/tone.

   

   What used to be called the military-industrial complex has morphed into the homeland security/counterterrorism-industrial complex, fighting an 'endless war' of a  'global war on terror/man-made disasters' against supremacists of all religions who go horribly wrong in trying to make a moral case of how people should treat each other, that the socialist economic and democratic political case couldn't make before.  More appropriate integration of religion and pluralistic democracies is what used to be known as interfaith (ecumenical) cooperation among communities of different faiths on social justice issues nonviolently within political systems.  Interfaith and ecumenical cooperation on social justice issues has taken the new form I blogged about here.


     


The comments from 'know your meme' make the same point that the 'no r-word' or 'say the word to end the word' social media and IRL stigma-busting advocacy campaigns stripped from public discourse by focusing too much on the use of a word, at all, rather than noting the context of how a word was used. 




Che
2 years ago
I think the summary above is wrong: “he talks about how Chuck’s acting method for his mentally handicapped character, the titular Simple Jack went “full retard”, thereby overdoing the acting and making a possibly decent film stupid.” In the dialogue it seems more like the fellow is saying, “Don’t accept the part of a fully mentally handicapped person.” Not, “Don’t overdo the acting.”



precambrian_ARISE
2 years ago  Che
It’s more that “retards” in successful oscar bait films are esthetically “retarded” (i.e. act in a weird way) instead of actually being afflicted by any mental disability. Probably the only exception to this would be the Aviator, however, OCD doesn’t influence intelligence and they barely show the later part of Howard Hugues’ [Hughes'] life where he utterly lost control.
Furthermore, the disability his frequently shown to allow them to do something great instead of being a, well, disability (i.e. A beautyful [Beautiful] mind).
Overdoing the acting has little to do with that. You just need to take the role of a “retard” that is actualy a superhero. You end up with a uplifting movie that get you a best actor oscar. If you take a role with an actual “retard” you get a realist but ultimately bleak movie and you go back home with nothing (i.e. the Aviator).
2


Che
2 years ago  precambrian_ARISE
There is the conspicuous exception of Day Lewis’s Oscar-winning performance in My Left Foot (1989), no? Cerebral palsy is also classified as a type of ‘mental retardation’; i.e., ‘intellectual disability’ (cf. ‘developmental disability’).


http://knowyourmeme.com/users/precambrian_arise

precambrian_ARISE
2 years ago  Che
Haven’t heard of that movie, but yeah that might be another exception (also Cerebral palsy ISN’T a type of mental retardation, those affected have normal intelligence but have muscular control problems).
The Simple Jack movie is a reference to the movie “I am Sam”, which was an obvious oscar bait movie that failed. In [comparison], Forest Gump and Rain Man got the oscar. These two movies show the lead role accomplishing great things because or with the help of their “retardation” while I am Sam is a little more realistic, showing the lead role to be actualy disabled and unable to be a decent father despite him wanting to. The movie with the lead caracther being “full retard” failed to get the oscar.
Also, this might be relevant to this article


https://en.m.wikipedia.org/wiki/Tropic_Thunder#Controversy