Neurodiversity self-advocates are threatening to cancel a fourth autism community knowledge source the Journal of Autism and DD

 

 Updated Sept 25, 2021 to correct an error.  Herwig Czech is living. He did not die in 1991. 

 

    The inclusion of this sentence

 

  “Some researchers say the new study has diminished their perception of the journal, which has an impact factor of 3.047. (A journal’s impact factor reflects how often its articles are cited.)…”

 

 in this article is simply a threat to the business future of the Journal of Autism and Developmental Disorders.  If JADD doesn’t retract the article, disclose the conflicts of interest or print a study from a CBPR-informed researcher like those at aaspire.org  then the JADD will be as dismissed as not a ‘credible’ source of autism information.  

  The phrase “some say” without attribution has been used to manufacture consensus where none exists by Fox News channel



Ideas favorable to Fox's slant are introduced by the words "some say." In journalism, those words can be fairly used to protect unnamed sources. On Fox, as Greenwald shows, they're used to inject opinion and spin under cover of reporting an existing phenomenon: "Some say Kerry looks French."


 as described in the film Outfoxed.   

  The work of Dr Hans Asperger have been dismissed by shunning as a ‘nazi sympathizer' since 2016 simply for not including unrelated girls Herta and Elizabeth Schreiber in clinical research as female gender identity representation. Instead Dr Asperger made the tragically wrong choice of following her parents' nazi sympathies and committing them to their eventual murder by induced pneumonia at the Am Spiegelgrund T4 execution center in Vienna.  Austria was illegally occupied and annexed by nazi Germany international aggression in 1938.  

 

  New information from a 2016 book "In a Different Key" by John Donvan and Caren Zucker excerpted here based on the work of the Herwig Czech was the basis of the total dismissal of Dr. Hans Asperger's research on autism.  

Below are pictures of pgs. 338,340,341 and 528 that are the most relevant to the influence of "In a Different Key" on the 'cancellation'/shunning of Dr. Hans Asperger.

 

 

Herwig Czech was researching, in May 2010, what became, by 2016, accepted consensus regarding German nazi collusion and support by Dr Hans Asperger. At the same time DSM 4 was recognizing Asperger's work with a name of an autism variation with more spoken language ability (communication skill) leading to better outcomes at building independent lives in communities of peoples' choosing with the costs privatized instead of socialized.  DSM 5, in May 2013, combined two diagnostic labels, autism and Asperger's Syndrome, into one label Autism Spectrum Disorder.  The book by Donvan and Zucker was released after the July 2016 death of the founder of autism speaks Suzanne Wright (wife of former NBC Universal/GE CEO Robert Wright before Comcast bought out their majority stake in 2010).

 

 The work of Dr. Tony Attwood has been dismissed as 'not credible' since 2009 for dismissing autistic adults as romantic relationship partners and in 2020 not being able to diagnose his own son and suggesting the link between autism and LGBTQ identities needs more study.  All the words singling out and demonizing the work of Dr. Tony Attwood are verbose ways of simply saying "Physician heal thyself." 

   Autism Speaks was the third target for singling out, demonization and delegitimization that neurodiversity-informed self advocates organized the larger autistic community around to center the interests of a narrower autistic constituency. Auti$m $peak$ is a shorthand name, referencing the large amounts of money from the Comcast buyout of the Wright's majority ownership stake in NBC/Universal, that distorted public discourse about how to help all autistic children and adults.  The narrower constituency, with the most intense needs for LTSS in HCBS, were revealed after the concerns of the neurodiversity and self-advocacy movements were not addressed in the March 2020 CARES act covid relief law with these advocacy demands, framed as universal human rights, attributed to the neurodiversity and autistic self-advocacy movements.  
  Only activists, self-advocates and disabled journalists covering disability ‘succeed’ from this ‘one strike and you’re out’ weaponized outrage also called ‘cancel culture.’  The basis of the ‘cancellations’ are new information that younger people can more easily form their views around than older people can change their views that are informed with a more long term perspective from more lived experience.   The pace of progressive and equitable social change of inclusion and acceptance for actually all autistics will be as slow as the pace of acceptance for individuals living with mental illness since the consumer-survivor movement catalyzed around the book On Our Own by the late Judy Chamberlin after the mental hygiene movement catalyzed around Clifford Beers was taken over by eugenics movement supporters and led to creating institutions for people with what’s now called intellectual disability.

 

   A growing number of jobs in activism and disabled journalists covering disability will result.  Movement progress toward its stated goals of acceptance for all autistics will still be hard to measure because  the inequities will be concealed with ‘respect for confidentiality’ except for a public figure here and there for the self-advocacy community to advocate the interests of only a more intense needs constituency.  Activism in the past has coalesced around stories of particularly harmed individuals with self-advocates  organizing  around the memory of Olmstead plaintiffs LC and EW and for the benefit of Zakh Price, Kayleb Moon-Robinson for the KASSA.  Also the court case brought by Margaret ‘Jenny’ Hatch for supported decision making instead of guardianship.  And Henry Frost for an inclusion aide at his Hillsborough County, FL neighborhood school.  Jennifer Msumba and Andre McCollins to stop the Rotenberg Center shocks and Britney Spears for more guardianship reform by ending conservatorships were three more individuals organizers built activism around.  Many others will be left behind with their confidentiality ‘respected’ and individuals denying they were harmed by bad public policy with the ‘speak for yourself’ and ‘nothing about us without us’ culture of consensus-building.  

  

But wait, let me explain what I mean by 'inclusive rhetoric for exclusive benefit'

 

 

I posted these tweets on my other account

 

https://twitter.com/nyr194/status/1121075563106570240?s=21

 

where I wrote, quoting a tweet that led to the block by @slooterman, "co-signs tweet that explains, in summary, how #neurodiversity uses inclusive rhetoric for exclusive benefit of ppl with intellectual and cognitive disabilities. More at 2 posts I wrote" 

https://selfadvocacyskepticism.blogspot.com/2017/03/how-inclusive-rhetoric-for-exclusive_30.html

https://selfadvocacyskepticism.blogspot.com/2017/01/inclusive-rhetoric-autistic-community.html

https://twitter.com/nyr194/status/113113702601154562?s=21

 where I wrote: "Fixed it. Sara Luterman blocked me for disagreement. She handles disagreement abt autistic politics as badly as Mark Bernkopf of aagw. net described here [link on this blog entitled "autistics speaking day speaking truth to aagw. net leadership power] with a screen shot of @slooterman quoting a @thinkingautism tweet with the text "Co-signed." 

 

The @thinkingautism tweet read "Please know that if your autistic or disability pride efforts distance yourself from our community members with intellectual or cognitive disabilities... ... then we will not be sharing your #disability or #autistic pride efforts. #neurodiversity

 

 This tweet I posted

https://twitter.com/nyr194/status/1131155157931180032?s=21

 

quoting a tweet where @thinkingautism wrote, probably soliciting replies to produce more content based on (reader) community engagement, on the "Thinking Person's Guide to Autism" site created by Landon Bryce as disclosed in the film Citizen Autistic:

"#AskingAutistics Do you have a hard time containing potentially hurtful language when escalated or agitated? Are there any strategies that have worked for you to avoid this, or is it usually due to preventable triggers, or...? Thank in advance #autism". 

 

 with a screenshot of @slooterman reply where I wrote "this thread is one of the #fails of Sara Luterman's imperfect system. 

 @slooterman wrote "Yes I've gotten pretty good at managing my anger and recognizing when I shouldn't be around other people, but it's not a perfect system." 

@slooterman is a good disabled journalist covering disability at the19thnews and radio lab also with clips posted at The Nation, The Atlantic and American Prospect.  She wrote a good substack in the time I subscribed to it from May 2020 until she deleted it in August 2021 to work on writing in other places.  Substack also had problems with paying advances to some writers who expressed objectionable opinions about gender identity and expression that was feared to persist after a merger with an Australian company Letter.   If one had subscribed I recommend saving the emails of each post.  They are the only archive left after the deletion from substack. 

ABLE Act was classist even its supporters demand raising SSI means test 7 years later

 

 

I posted this tweet 

 

https://twitter.com/rightwordswron1/status1123960581994819586?s=21 

on May 2, 2019 in reply to a thread that started in 2014 about scrapping the FICA cap to improve both Social Security and the SSI and SSDI trust funds to keep them solvent.  The controllers of 2 accounts in the thread, @mooncatadams and @autsomesmiles whom I have met IRL, have since blocked my account.  @autsomesmiles unblocked my account as of an August 25, 2021 profile view. 

 

 

The tweet shared a post on this blog  and the text

 "ABLE act only helped SSI beneficiaries if they had rich family or friends to pay into account. @autsomesmiles told me in 2012 picketing autism speaks ppl could get mini-grants for ABLE accts."  

  An August 24, 2021 blast email from ASAN had, among various asks to write, call by voice or volunteer proxy caller, members of Congress and Senators during recess month to raise the asset limit for SSI 7 years after the ABLE act created accounts to shelter assets from the means test.  It apparently was a good assumption to assume #PwDs are frequently living in poverty and their families are too poor to contribute to ABLE accounts after spending their own money to compensate for inadequate LTSS funding at all levels of government.  Even the Autistic Women and POC fund fiscally-sponsored by the Autism Women and Nonbinary Network cannot keep up with meeting grant requests. They have had to limit applications to exclude parents of autistics and restricted grants to only autistics applying for their own needs. 

 

• Use our email tools and tell Congress to act now: it only takes a few clicks to urge your members of Congress 
• to pass the Keeping All Students Safe Act (KASSA) and the Transformation to Competitive Integrated Employment Act (TCIEA),
•  and to include SSI reform  
• https://autisticadvocacy.org/actioncenter/ssi/?emci=c25cf948-6500-ec11-b563-501ac57b8fa7&emdi=ea6423e4-1505-ec11-b563-501ac57b8fa7&ceid=7855600 
• and funding for home- and community-based services in the next COVID relief bill. 
• KASSA would ban nearly all types of restraint and all types of seclusion across the country. It would also require schools to collect data to prevent any further use of these dangerous and abusive practices. 
• TCIEA would end the discriminatory practice of subminimum wage, and give states and service providers the resources they need to create better employment support programs.
• Send a letter in support of Massachusetts Bill H.225, which would ban “aversives” like shock torture in Massachusetts, where the Judge Rotenberg Center is located [Canton, MA]..

  Perhaps my 2019 tweet that led to 2 blocks, one still in place, was accurate over the long term. The blocks were a result of the person administering the blocking account possibly covering feelings of being 'butthurt' with tone-policing bluntness.  The blocking person incorrectly perceived bluntness as 'lack of tact/politeness/respect' and refusing to interact with a person.     

One of the replies by @mooncatadams from June 7, 2014 I can still view from a screenshot taken before the block read replying to @NextNewDeal @Sarah_Reynolds and @DaleF3:

"I know, some autistic ppl I know get SSI, and they barely eke by, living with parents or some such."

Even blocking account @mooncatadams knew the correlation and causation of living in poverty with a disability. 

After the 2016 election the account @Sarah_Reynolds changed partisanship and supported Republican policies of ex-President Trump and continues to support covid19 vaccine hesitancy and opposition to mask and vaccine mandates to obstruct Pres Biden and the small Democratic majorities to help Republicans in future elections. 

In combo with 'red flag' ERPO laws to take away guns fiscal and budget policy ERPO 'red flags' are needed

    The following column linked to this study to support the claim 3-5% of people with mental illness are likely to commit a crime.  That’s the only part of the mental illness community social libs and fiscal cons support spending tax money to treat. Everyone else ‘must’ pay, not seek ‘other peoples’ money’ (taxes) in financial aid.  Instead 95-97% of people *must* (sarcasm alert) help themselves with individual empowerment, mindfulness and self advocate/consumer-survivor operated community organizations. People *should* (sarcasm alert) have freedom to succeed or fail, where failure means to live a descent into deeper poverty.  At least the free sovereign individual is participating in free markets living under a republican form of government, without democracy, to build a nation around. (End sarcasm alert)


  In this study 29% of family murders and 7% of murders are related to SMI and that’s the only population the Manhattan Institute-paid fellow prescribes as worthy of public spending. Any other needs should be privatized.  Instead of surveillance and compulsion leading to involuntary in-patient commitment or involuntary (assisted) outpatient treatment elected legislators at local, state and federal levels should put the money into expanding benefits counseling to help patients and families struggling to navigate confusing state and local systems of care (paid for with federal funds to states) before people deteriorate into a crisis. 









  Fuller Torrey-founder of TAC, that released the paper DJ Jaffe cites, support of forced commitment or outpatient treatment that for-profit insurance is too greedy to pay for unless required joins the Manhattan Institute from a more fiscally liberal or economically-populist viewpoint.  Get the most needy helped even if it costs more in local, state or federal taxes to pay for the help that individuals in need cannot pay for.  

Fuller Torrey did call out insurer Bill McGuire of United Health Care greed


   Fuller Torrey in this 1998 "Brain Storm" article (reprinted from the Washington D.C. City Paper) called out managed care 'one size fits all for efficiency for profit' practice of medicine and even United Health Care CEO Bill McGuire’s $6.1 million 1 year  ($1 Billion in UHC CEO career) salary.



Over the course of two hours, Torrey rails against federal funding schemes for mental health care and attacks civil liberties lawyers for preventing sick people from getting well. He takes some potshots at John Mack, the Harvard psychiatrist who bills insurance companies for psychotherapy treatment for people who've been abducted by aliens. He skewers "mangled care" companies for paying CEOs multimillion-dollar salaries at the same time that they deprive the mentally ill of treatment. After noting that in 1994 William McGuire, CEO of United Healthcare, received $6.1 million in compensation, Torrey says, "If any of you think William McGuire is going to give back $1 million to open a clubhouse [a successful day program for the mentally ill], see me afterward and I'll give you a prescription for Haldol."


   The Manhattan Institute elevated DJ Jaffe's views into the WaPo
because the piece didn’t call out for-profit insurance company greed because the fellowship grantor Manhattan Institute (employer of D.J. Jaffe for purposes of pay for writing the column) has a mission that is too-individual supremacist and supportive of small government to call to improve the commons paid for by all levels of government.  

   The books P.C. M.D., "SHAM How the Self-Help and Actualization Movement Made America Helpless" described here try to show that helping people ration themselves out of seeking help for less acute, or chronic, problems with mindfulness is a failure.


   Instead of shifting costs for 95-97% of people with MI symptoms who may be dually-diagnosed with Developmental Disability without Intellectual Disability, or prevent 29% of family murders and 7% of all murders help the person in desperate need before they harm without surveillance and stigma. Expand public discourse and medical classification concept of dual diagnosis beyond substance abuse to DD without ID, formerly mental retardation before Rosa’s Law.  Expand availability of help with independent living issues, that will require ‘someone else’s money,’ at all government levels with a policy ERPO (extreme risk protection order AKA a 'red flag') to build an electoral imperative (people demand their 'electeds' authorize spending in budgets) to increase and reprogram (divert from what hasn't worked to what works) spending on public mental health programs. 
 







   Even socially-liberal California isn't yet fiscally-liberal or economically-populist enough 



 Williams said the ability of one-third of the legislature to block any form of taxation prevents those working to prevent gun violence from coming up with new solutions.
“One-third of the legislature blocks all forms of taxation, including ones that could make us safer, including ones that could provide revenue that is otherwise unavailable to make basic improvements in either our data basing, our investigations, our law enforcement,” Williams said. “I can tell you that most of our communities do not have adequate funding for law enforcement, and a tax on ammunition to fund that sort of investigation is a great idea and one that I would support.”


...

“We can’t get a two-thirds vote on almost any tax, and, frankly, there is not a single Republican vote I can think of in the legislature that would support any implementation of any limitations on firearms and certainly not imposing a tax.” Jackson said. “That’s double negative for the Republican party, a tax and then doing anything to challenge the gun lobby.”



to lessen individual surveillance to limit gun ownership rights or even tax bullets (ammunition) to increase state spending on LTSS in HCBS.
  

   How about a budget ERPO, or 'red flag' fiscal policy, to spend more, not cut and shift to individuals directly and indirectly-affected, spending for voluntary services where people live? In 2002 a county Blue Ribbon Commission documented similar problems after CPC Health, owner-operator of Chestnut Lodge, closed ultimately becoming more luxury housing in 15 years.  No follow up on what happened to former patients
who may or may not have found adequate individual help from its replacement was done.  Policies to maintain confidentiality conceal inequity and inequality after austerity.  Another commission renewed study of the Mobile Crisis Teams and 24-7 walk-in centers paid for by the public mental health system and released a 2019 Annual Report.  One of the last sentences in the 2019 Annual Report is not hopeful, by the emphasis on relationship between MI and substance use and addiction,  for improving LTSS in HCBS for Marylanders with SPMI (severe persistent mental illness) dually-diagnosed with DD without ID such as autism spectrum disorder without intellectual disability.

It is the hope of the Commission that by addressing the critical issue of mental and behavioral health, including its relationship to substance use disorder and the opioid epidemic, that the State will be able to better deliver services to its most vulnerable citizens, improve outcomes, and save lives.

Inequities in quality of life improvement from neurodiversity acceptance can only be helped by expanding public social and human services not rationing to low functioning/intense needs

  AOT (assisted outpatient treatment), where an individual living with a disability is forced to take the assistance, is worthless if there isn't quality treatment to force someone into.  The person in need of help had intersectional (dual diagnosed) autism & MI symptoms. #ActuallyAutistic people should avoid knee-jerk dismissal of the column because the author used the archaic term ‘idiot savant autistic."


    
And then there are the hidden wounded, the too-often voiceless who are treated as though they are the living dead. They don’t seem to matter. Those whose souls are tormented, those with delusions, with post-traumatic stress disorder.
The mentally ill fight a battle every day — they battle to want to live, to not hurt others so they may live, to run from those who would take their life because the hidden wounds of mental illness are too often misunderstood.
These men and women often stay in the ER and triage area until the elusive open bed in a psychiatric ward is found. When that coveted prize the mentally ill need so desperately does appear, it is available for only a brief stay. And while in the psychiatric ward, patients with mental illness often are given a round of very serious medications — but they do not get to stay long enough to see whether those medications work.
On Dec. 27, I took my son to the emergency room. After 9 p.m. on the third day, we were still waiting for that promised treasure — the psychiatric bed. My son, a musically gifted soul in his early 20s, chose to go to the hospital, trying to be safe from himself, from the demons that cause havoc in his head.


The process for getting help for the people with mental illness in Prince George’s County is like running on a treadmill: It never ends. Nothing is ever easy or organized. I know Prince George’s isn’t the worst place for mental-health care, but it is where my son and I live, so it is of paramount importance to us.
While we were waiting in the emergency room, my son did not get his normal round of psychotropic medications (which I hate, but they supposedly keep him stable and sane), so I constantly had to remind the ER nurse about the reasons for his agitation and the mania phase of his bipolar and schizophrenic conditions. He is idiot savant autistic — musically, so he always has music in his head, sometimes accompanied by racing thoughts. This traffic in his head is what leads to the episodic series that plays out in the emergency room.




    The use of an archaic term is a result of one more parent not being helped by #neurodiversity #selfadvocacy equitably as much as other autistics without LTSS provided in HCBS who may have been forced to monetize their skills to earn income on patreon, ko-fi.com, substack.com or with #pitchwars mentorship.  


   Some #selfadvocates promoting #neurodiversity even deny they are disabled severely enough to perceive a personal need to seek services preferring to use the private messaging functions of facebook and twitter to stay in contact with real people they know in their personal social and professional networks. Using crowdfunding sites like patreon, substack or #pitchwars mentorship were last resort solutions after federal austerity to programs like Medicaid trickled down to local (county and municipality) and state government austerity that likely killed funding for supported or customized employment programs.  


   Federal Education department funds from OSERS (Office of Special Education and Rehabilitation Services) to state VR (vocational rehab) programs has also been grossly inadequate as well as not coordinated with ODEP (Office of Disability Employment Policy) at the Labor Department to adjust to changing labor market skill demands and job creation.  Those who didn’t raise enough money to live or lost #pitchwars mentor competitions are the practical equivalent of consumers who lose supports. Poverty has claimed another victim. Don’t disregard the author’s perspective because of knee-jerk language objections.  Current usage of an old term "idiot savant autistic" shows inequity and inequality in LTSS access in HCBS that self-advocate run organizations informed by #neurodiversity will never replace safety net with. The organizations don’t even try to. Instead self-advocate operated organizations attempt to narrow demand for expanded LTSS services in HCBS settings by stopping people from identifying themselves as severely disabled enough to apply, because they believe they don’t qualify, for services.

   Empowering individuals and focusing on strengths, to divide working and middle class even by unrealized aspirations not weaknesses, should be regarded by more people as code phrases for diversion of demand for social services to preserve what little is left for people who 'truly' need the services.  Confidentiality protects the inequity and inequality.  Telling people to have gratitude for what little one has is the spiritual, in the form of self-help rather than systemic help, not religious, opiate of the masses to silence calls to expand services by widening eligibility criteria.


  When I interviewed Maya Angelou for my book Bouncing Forward, she advised me to develop “an attitude of gratitude. You could have died last night, you know. Be grateful. Stand on the good foot. People like you better. And you like yourself better.”  













 

Sligo Ave in Silver Spring and Church Street in Frederick both discourage single poor tenants in new housing

      Most of the apartments to be built in on Sligo Avenue in Silver Spring are 35 2 bedroom and 18 three bedroom apartments.  Only 18 one bedroom units to be built.  Only 54 parking spaces (less than one car per unit) would be built.  The greater numbers of larger and more expensive units will likely price people out of the option of car ownership and housing.  That meets the nimby pretext against ADUs voiced by @mocomillenial 'Helene" or "Keep calm and dance lezginka" that crowding was more about keeping new cars, rather than new people, out of single family neighborhoods. 



   Even in Frederick, where Montgomery County Executive Marc Elrich prefers to create more jobs for the displaced former Montgomery residents to find to avoid congesting roads like 270 and 355 connecting to Montgomery county reducing demand to meet in Montgomery County for both transportation and housing units, greater resistance to new housing for single adults than new affordable housing for families is showing.  Only 10 of 83 units planned to be built in the Ox Fibre apartments at 400 West Church Street in a former Goodwill Industries building will be affordable for tenants earning $34,000 per year (40% of Frederick County AMI).  51 one bedroom, 26 two bedroom and six three bedroom units were the planned unit mix.  A payment in lieu of taxes PILOT will be paid by the developer to reduce the rent $31/month per unit.  More one bedroom units but only 10 affordable for the lowest income tenants.  


   A pattern in two projects in two counties is apparent though.  The least welcome new residents, for whatever reason, are single tenants, without spouses or children, at lower incomes.  The lack of school impact or road impact, if the new single residents don't own (can't afford) cars don't accrue acceptance in more willingness to support building more housing affordable to new single residents. 

  When Montgomery County was discussing the ADU bill that eventually became law an amendment (Bill 20-19) by District 1 Councilmember Andrew Friedson proposed waiving the $571 application fee and $101 annual license fee if the ADU tenant had a verified disability.  Many people with disabilities looking 'in the market' for an accessory dwelling unit of usually under 800 sq feet are single adults.  This is a good start by Councilmember Friedson to start to de-stigmatize single adult tenants some of whom happen to live with disabilities.   

Institutionalized or not #PwDs all have LTSS needs worthy of HCBS social safety net funds

    This article  served to divide union direct service workers from people with ID/DD (formerly called 'mental retardation') served.
It was amplified on twitter (to get more clicks and impressions-numbers of readers) by linking to a local PA struggle to close the Polk Center and White Haven ID/DD institutions without a clear plan to provide equity for deinstitutionalized #PwDs and the direct service providers who do the work of providing the care.  



   The local op-ed writer is running for the 36th House District in Pennsylvania as the first openly-autistic state legislator.    Voters of all neurologies (autistic and neurotypical/non-autistic hope Jessica Benham is as supportive of deepening the inclusion of autistics who have fortunately been able to avoid institutions as well as ‘freeing our people’ (hat tip h/t ADAPT Americans Disabled for Attendant Programs Today or Accessible Public Transportation) from institutions.  Inclusion can be deepened by creating more supported and customized employment programs for autistics with less intense needs who don’t require institutional living.  Less intense needs autistics are still kept in degrees of poverty still living with families until parental death creates crises of urgently needed housing transitions to avoid another person experiencing homelessness.  


   The WaPo (Washington Post) and Pittsburgh Current op-ed columns erased the fiscal intersectionality of unionized direct service worker fears for their futures as lower-paid community based non union (thanks Harris v Quinn) workers with only annual help from state and local ARC chapters’ advocacy days that have now gone ‘national’ in scope   to raise DSP pay to avoid turnover that still is the norm.  The inclusive rhetoric to demand benefits that are hopefully more inclusive than the past history of ID/DD self-advocacy, that failed to deepen the fiscally marginalized social inclusion as well as ending service provision in institutional environments, will continue in 2020 with a jointly sponsored conference.

   The migration of the advocacy for higher DSP pay from state to federal levels shows how slow the pace of progressive change is by annual activists’ self-advocacy demands that are inadequately met.  Equity in systemic change is needed for ppl with ID/DD and the support workers.