inequitable pace of positive change can turn people against a movement

 

I shared my thoughts on @autismgadfly Jonathan Mitchell's motivations at the end of this post written in 2017 I shared with @Samanticka a year later,

 @Samanticka
I wrote this post about acceptance v cure last year. Shorter message: who pays costs of acceptance & inclusion & can all pay & receive to decent living standard? https://selfadvocacyskepticism.blogspot.com/2017/03/social-acceptance-goal-of-autism.html?m=1

12:43 PM · Jan 23, 2018·Twitter for iPhone

 in 2018, led to this twitter conversation. @slooterman joined in and replied too but both account controllers have since deleted their tweets.   Screenshots replace links because of tweet deletions since 2018. 

 @slooterman in the first 3 screenshots divided views of individual critic of neurodiversity movement, autismgadfly, as his personal views, unrelated to failure to find adequate LTSS in HCBS in his community, while centering most intense needs autistics in neurodiversity-informed activism demands.  @slooterman divided an autistic community from an autistic constituency by supporting the status quo of organizing a larger community to advocate for a smaller constituency.   Since 2011 autistic self-advocacy as done by ASAN partnered with the intense needs/low functioning ID/DD (formerly MR) group Self Advocates Becoming Empowered SABE.  Activism followed model with more inclusive rhetoric.  Being able to drive, afford a car and live alone in an apartment still without a job is not a fully independent life.  @autismgadfly is blaming the activists not the legislators of one party, Republican, who balk at spending any money for domestic discretionary programs.  That reluctance leads activists/self advocates to narrow the community into a smaller constituency with demands for more funding for LTSS delivered in HCBS. 

 

 

 

 

 

@slooterman replied to my account @nyr194 agreeing with me that private contractors are not better than public services.  The link she posted is inaccessible by twitter but one troubled ID group home contractor has rebranded after being exposed.

 

I also posted this to try to understand @autismgadfly's anti-neurodiversity and pro-cure (or what @autismgadfly means by a cure for his autism) politics. 

 This was one of the replies posted by autismgadfly. 

 @autismgadfly
·
Jan 25, 2018

but, yes, the post claiming I came to these conclusions due to bad financial circumstances and being left behind is absolutely false and typical of the dishonest statements ND's constantly write.

  Twitter account @lauralovesian1 replying “You are free to express your views” is condescending and a backhanded compliment.  @autismgadfly is 'Free to express' as long as others never agree making him an ‘influencer’ or persuasive.  If @autismgadfly views become persuasive then others feel entitled to attack gadfly by calling the views problematic then bigoted (ableist).

 

@slooterman wrote this column

 

 Some words on special needs moms in horror movies
The Babadook and other updates

Sara
Oct 12 [2020]



Heads up, folks: This week’s newsletter is about the portrayal of filicide in fiction. There is some very graphic description of filicide, and ideas about filicide. There are also spoilers for The Babadook.

In October, we watch horror movies.
COVID-19 may have prevented me from seeing my family for the Jewish High Holidays, but it can’t prevent me from a cherished tradition with my partner. I love horror movies. I wasn’t allowed to watch them as a kid — My mother was concerned about violence in media — So they’re forbidden fruit. Part of the pleasure is the sense of transgression. I’ve been living independently for years, but watching a horror movie still feels very much like I’m getting away with something.
Most recently, I saw The Babadook for the first time. And it may be one of the most disturbing horror movies I’ve ever seen. There are a lot of murderous mothers in horror movies. In The Conjuring, for example, an evil spirit possesses a mother in order to induce her to kill her own children. These stories are presented in stark moral terms. Killing one’s own children is seen as the ultimate evil, something that could only come from demonic influence or a cartoonish sort of mental illness.
But that’s not the case in The Babadook. In The Babadook, we’re encouraged to empathize and understand why a woman might be driven to kill her own child. This isn’t just my own interpretation of the film — The director, Jennifer Kent, has been fairly explicit about it.
"Now, I'm not saying we all want to go and kill our kids, but a lot of women struggle. And it is a very taboo subject, to say that motherhood is anything but a perfect experience for women."
In The Babadook, a mother, Amelia, is having a very difficult time. Her husband died driving her to the hospital. Her son, Samuel, has significant behavioral issues — He screams, makes makeshift weapons, talks endlessly about monsters, and is occasionally violent. He wakes her almost every night, so she hasn’t gotten much sleep. While there is no explicit reference to a condition like autism or ADHD, his behavior is painfully familiar. Amelia is exhauasted, sleep deprived, and struggles at work. Her sister rejects Samuel, and by extension, rejects Amelia. And the viewer is drawn deeper and deeper into sympathizing with Amelia.
Amelia has little support, but she also actively pushes support away. In one of the earliest scenes in the movie, Samuel’s teachers suggest that Samuel get a 1-to-1 aide. Instead, Amelia pulls him out of school. Amelia’s neighbor, a kind old woman named Gracie Roach, offers kind words and to even let Samuel sleep over. But Amelia refuses. She stops going to work. Slowly, Amelia and Samuel become more and more isolated, as they are hunted by a monster called the Babadook. Amelia, exhausted and terrified, becomes more and more violent, eventually killing the family dog before attempting to kill Samuel.
Many other critics have interpreted the Babadook to be a representation of grief — It is impossible to get rid of the Babadook. Instead, the Babadook, and by extension, grief, is something you have to learn to live with. But I think the Babadook is also embodied, murderous ableism. And while I’m disturbed by Jennifer Kent’s assertion that this is a tAbOo we should talk about, I appreciate that the Babadook is not portrayed as normal. Not everyone has a Babadook. Not everyone disabled has a Babadook. The neighbor, who has Parkinson’s, doesn’t have a Babadook. The seniors confined to the dementia ward where Amelia works don’t have a Babadook. The Babadook isn’t seen as natural or as an inevitability, and I appreciate that. Ultimately, Amelia does not kill her son. Instead, she learns to live with her darker impulses, without letting them consume her.

 

 

 on her substack page that rustedaspie (I) subscribed to from May 2020 until she deleted it in August 2021.  

 

  Although he will likely deny the point, @autismgadfly has a Babadook against neurodiversity and self-advocate operated organizations because he didn’t get the accommodations or supports to hold a job that Sara Luterman got.  Getting inclusion, acceptance, LTSS in HCBS and reasonable accommodations (paid for by one or more levels of government because individuals cannot pay the full cost) help people with disabilities drop their individual Babadooks.  Neurodiversity self advocates fail to help as many people drop their individual Babadooks as they claim.  That leads to 'drama' (conflict) between autistics arguing about neurodiversity.  Confidentiality conceals the inequities, inequalities and the self-advocacy movement failures.  Confidentiality also privatizes the costs of that change for some people (less intense needs/ not severe disabilities) and socializes the costs for other people (intense needs/severe disabilities).  Some people who need to privatize those costs of improved independent living situations 'get that' and are share their justified resentment for the inequitable help that they still are reluctant to discuss in public discourse.    

rustedaspie was attacked in 2018 by friends of the accounts who in 2020 called Ari N and Steve S part of a 'trifecta of evil"

 

 

      Your humble blogger, rustedaspie, was attacked by friends' of twitter accounts of @tclementsuk and @autismgadfly, who later attacked Ari N and Steve S, and has only the screen shots to prove it.  The tweets of the accounts that interacted with my account have been deleted by users or account deletions.  

 

  I joined a thread that promoted this

 

Recently, this trend has started to change and there's been a slow growth of autistics who see the problems with neurodiversity.  Writers Tom Clements, Gwen Kansen, and Twilah Hiari have written unfavorable pieces about neurodiversity.  Anorther writer, and twitter user Jonathan Ferguson (AKA One-Tongued Johnny and Wallace Runnymeade) has also spoken out against neurodiversity.  Yuval Levental is another individual who occasionally contributes to the discourse about this loathesome movement and the problems associated with it.  One-Tongued Johnny started a #neurodiversityishistory hashtag, but it's use was noneffective and ephemeral. 

 

 blog post I quote from above.  Screenshots are posted without links because the other accounts (@tclementsuk) deleted their tweets since June 2018 or the accounts (@YesThatAnna) were suspended. 

This tweet, also shown in the screen shot below, hasn't been deleted.  https://twitter.com/beingautistic/status/1002867079371018240?s=21

 

My tweet continues from the screen shot above to the screen shot of the full tweet below. 

   I posted this tweet to sum up what I thought the other accounts were arguing about regarding whether to support the 'neurodiversity' concept as an organizing philosophy. 

 

  The since-deleted account @onetonguejohnny attacked my account several times based on @onetonguejohnny (Jon Ferguson's) hatred of state attempts to help people in need because of difficulty in obtaining it.  Help was difficult to obtain because of richest people paying news & entertainment media actors & journalists to tell poor white people to hate poor black and brown people.  I call the phenomenon dividing civil rights protected class (disability) by the economic class stratification within the civil rights protected class.  In plain language the political right likes the rich members of all marginalized and oppressed communities to divide the communities from the constituencies that need financial help paying for LTSS in HCBS.  Here are screen shots of his attacks.  

 

  My reply to the twitter attack from later-suspended account @onetonguejohnny is: Entitlement (earned benefit) is what happens after one is qualified to receive something.  Victimhood is believing one is qualified despite harm until evidence proves one has or hasn't earned the benefit.  The evidence is evaluated by government administrators of the social programs to determine eligibility with the accountability measure of an appeals process.

  

 @onetonguejohnny   as a twitter account was suspended after reports (link might be dead screen shots below of what the tweets showed) of more attacks.  

 

 

 

 

 

@onetonguejohnny changed his bio page 

 

 

 

several times before the account was suspended. 

'alt right' and 'autistic dark web' are mostly Angry White Men who blame the wrong political 'side' for their problems

 

 

 

   The pace of progressive social change to accept, include, accommodate and pay the costs, that individuals cannot pay, in the disability rights movement is savagely unequal.  Those left desperately behind post and say mean things (lash out) 

 

 

 

to those whose 'life journeys' living with a disability have a better quality of life.  Confidentiality conceals the inequities. 

 

  One such instance of 'lashing out' was in this column by @tclementsuk on twitter.  Fruatration led to a personal attack on Ari Ne'eman and Steve Silberman by @autismgadfly an online 'friend' or 'follower' on twitter of @tclementsuk.  The attack was pushed back on here and here.   

 

  The second link above, from neuroclastic.com, tried to break down the opponents of the idea of 'neurodiversity' into several groups.  The two groups below

3. The “severe” autism lobby, those promoting a false dichotomy of “mild” and “severe” autism, which primarily leans on the falsehood that non-speaking autistics are severely intellectually disabled. They dehumanize non-speakers by perpetuating misinformed assumptions about their competence and by positing that those with intellectual disability are incapable of self-advocacy or are less human.

4. The anti-neurodiversity movement, many of whose members have been called the “Autistic Dark Web,” a troupe of people who are mostly regarded as trolls and are most visible on Twitter. These people claim that the #ActuallyAutistic/Neurodiversity Movement is full of “social justice warriors” from the far left who want to turn autism into an issue of “identity politics.”

 very well might represent families and friends of people with severe autism who have not progressed as far 'down the path' to full inclusion, acceptance and accommodation in their individually chosen commnunities.  Bad public policy in national, provincial and local governments that inadequately publicizes, funds and delivers LTSS in HCBS is the variable that the 'alt right' or 'autistic dark web' ignores because they don't support a role of government in peoples' lives to help people beyond police, courts and military to protect property and life (in that order).  Confidentiality conceals the inequities and inequalities and prevents the 'scientifically valid' data gathering and sampling.  

 

  Ari Ne'eman and Steve Silberman were the two people attacked and Ari 'laughed off' the 'trifecta of evil' insult with this tweet deleted since February 2020.  

 

  Ari Ne'eman further tried to 'laugh off' the attack by joking about his trouble finding a Middle Eastern (including Israeli) food to his liking.  

      

   This tweet is one

 

 

 

 

 of the few in the February 16, 2020 thread that hasn't been deleted. 

    Pace of change battles between people who feel they have a worse 'quality of life' who attack those they feel have a better 'quality of life' emerge a lot on social media.  Demands to replace the Affordable Care Act with Medicare for all expanded in benefits and payment rates instead of a 'public option' to buy expanded Medicare instead of private for-profit health insurance are one example.  Demands for free college or a return to more aid that isn't in the form of repayable loans are another public policy example.  People in the 'alt right' or 'autistic dark web' might represent people left behind in the pace of positive social change.  Confidentiality prevents the data-gathering of numbers of people actually helped by activist social movements like the disability rights movement informed by 'neurodiversity.' Being left behind in the progress of positive social change makes individuals vulnerable to extreme right wing political/economic ideologies that have prejudice and hate at their core.  This article is a great read to move the focus back to systemic economics and politics and away from bigoted individuals attacking other individuals in words or with physical weapons.